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Resources for Patients

The following are select national and international resources
pertaining to disease, genetic disorders and clinical trials.
If you are aware of a resource we should include,
please submit it through Feedback.

America's Athletes with Disabilities (AAD) -- The mission of AAD is to raise and manage the funds necessary to support the Victory Games, athletic competitions held around the country that offer adults and youth with disabilities crucial and valuable experiences in personal growth and achievement.

Atlas of United States Mortality -- This atlas, published by the CDC, is the first to show all leading causes of death by race and sex for small U.S. geographic areas referred to as Health Service Areas (HSA's).

Autism - National Alliance for Autism Research (NAAR) -- The National Alliance for Autism Research, NAAR, is a national nonprofit, tax-exempt organization dedicated to finding the causes, prevention, effective treatment and, ultimately, cure of the autism spectrum disorders.

CancerCare -- A national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance.

Centers for Disease Control and Prevention (CDC) -- The CDC is an agency of the U.S. Department of Health and Human Services. The CDC's mission is to promote health and quality of life by preventing and controlling disease, injury, and disability. The site provides a wide range of health related information with links to national and international resources.

CenterWatch -- CenterWatch provides an international listing of industry- and government-sponsored clinical trials, as well as other resources for patients and researchers.

Children Affected by AIDS Foundation (CAAF) -- The mission of CAAF is to make a positive difference in the lives of children infected with HIV and affected by AIDS. CAAF accomplishes this by helping meet their diverse, special needs, advocating and educating on their behalf, and bringing joy and fun into their lives.

Colorado HealthSite (CHS) -- The CHS is a nonprofit corporation providing access to information, support services, medical resources and related health care information for persons with chronic medical conditions.

Combined Health Information Database (CHID) -- CHID is a database produced by health-related agencies of the Federal Government. This database provides titles, abstracts, and availability information for health information and health education resources.

DrugDigest -- DrugDigest is a noncommercial, evidence-based, consumer health and drug information site dedicated to empowering consumers to make informed choices about drugs and treatment options.

Food & Drug Administration -- Source of information about the U.S. Food and Drug Administration, with information about newly approved drugs and medical devices.

Genetic & Rare Conditions -- Comprehensive source of information about genetic and rare conditions, support groups and information provided by the University of Kansas Medical Center.

Global Health Council -- The Global Health Council is the world's largest membership alliance dedicated to saving lives by improving health throughout the world. The Council works to ensure that all who strive for improvement and equity in global health have the information and resources they need to succeed.

Gluten Intolerance Group (GIG) -- The Gluten Intolerance Group is a non-profit organization dedicated to increasing awareness of gluten intolerance by providing information, and education, as well as support, to those with celiac disease/dermatitis herpetiformis, their families, health care professionals and the general public.

Growth House -- Growth House provides an international gateway to resources for life-threatening illness and end of life care. The primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration.

HealthTalk InteractiveTM -- Sounding like talk radio shows, but delivered both over the telephone - via toll-free numbers - and the Internet, HealthTalk Interactive® (HTISM) is a free, around-the-clock service that connects patients and family members worldwide with leading medical experts and also with other people like themselves.

Healthtouch® -- Healthtouch® is a source for health information, health products, and health services, including: drug information, a health resource directory, and information on health, wellness, diseases, and illnesses.

Hep C Connection -- Hep C Connection, based in Denver, is the country's largest Hepatitis C patient network.

International Patient Advocacy Association (IPAA) -- IPAA is a non-profit organization that works closely with patients, industry, researchers and legislators to provide legal and patient of charge. Any individual diagnosed with a chronic illness can receive help with obtaining new treatment therapies, insurance coverage, educational materials, patient meetings, lobbying efforts, and more.

Locks of Love -- Locks of Love is a non-profit organization that provides hairpieces to financially disadvantaged children across the U.S. under age 18 suffering from long-term medical hair loss.

MayoClinic Health Oasis -- The Mayo Clinic Health Oasis provides a wide range of reliable health information and patient resources that is directed by a team of Mayo physicians, scientists, writers and educators.

MEDLINEplus -- MEDLINEplus, an educational resource tool, of the National Library of Medicine,  provides access to over nine million published scientific articles, and access to a directory of health topics for consumers and professionals, physician referral directories, medical terminology, and more.

Merck -- Obtain information about the Merck Company and access the Merck Manual the most widely used medical text in the world covering all but the most obscure disorders, including symptoms, common clinical procedures, laboratory tests, and virtually all the disorders that a general internist might encounter. The Manual also deals with problems of pregnancy and delivery; common and serious disorders of neonates, infants, and children; genetics; drug dependency; psychiatric disorders; and many disorders covered by other specialties.

MS Knowledge Center -- MS Knowledge Center, published by Seattle based Immunex Corporation, is an informational resource for people with Multiple Sclerosis, family members and health care providers.

National Alliance for the Mentally Ill, (NAMI) -- The mission of NAMI is to improve the quality of life for people with chronic mental illnesses and their families. NAMI provides support groups, informs and educates, reachs out to the community, advocate for improved services and research, and fight to eliminate stigma in mental  illness.

National Comprehensive Cancer Network (NCCN) -- The NCCN was formed to create cancer-management strategies for large employers and third-party payers. Its mission is to integrate the experience of member cancer centers to ensure delivery of high-quality, cost-effective services to cancer patients across the country.

National Foundation for the Treatment of Pain -- The National Foundation for the Treatment of Pain is a not-for-profit organization dedicated to providing support for patients who are suffering from intractable pain, their families, friends and the physicians who treat them. It is also a resource for medical professionals and attorneys concerned with legal issues regarding the legitimate treatment of pain.

PATH Web Sites -- A list of websites implemented by PATH, or Program for Appropriate Technology in Health. PATH identifies, develops, and applies appropriate and innovative solutions to public health problems. Included are websites dedicated to vaccines, cancer prevention, and reproductive health.

Pediatric Cancer Research Foundation -- A non-profit organization striving to improve the care, quality of life, and survival rate of children with malignant diseases.

Public Responsibility in Medicine and Research (PRIM&R) -- The PRIM&R is committed to the advancement of research programs and the consistent application of ethical precepts in medicine and research. Topics addressed include: the ethical and procedural issues surrounding the operation of Institutional Review Boards and Institutional Animal Care and Use Committees, the range of problems surrounding AIDS research and treatment, reproductive and other technologies and their effects on patient care, healthcare ethics committees, scientific integrity and conflict of interest, and the general questions surrounding academic/industrial relations.

PubMed -- A National Library of Medicine's search service to access the 9 million citations in MEDLINE and Pre-MEDLINE (with links to participating on-line journals), and other related databases.

Research America -- Research America, founded in 1989, is a not-for-profit, membership-supported, public education and advocacy alliance.   Its mission is to make medical research a much higher national priority.

The Body: Multimedia AIDS and HIV Information -- Obtain the latest news on AIDS & HIV research, reports on scientific developments, Q&A from specialists, large collection of linked resources, including discussion groups.

WellnessWeb -- WellnessWeb is a collaboration of patients, healthcare professionals, and other caregivers. Access information about clinical trials, community health, drug dosages and compliance, treatment options and research, how to select a health care provider, reports on dozens of illnesses and conditions, tips about healthy lifestyles, complementary treatment alternatives and options, and many more topics.

Young Survival Coalition (YSC) -- The YSC is the only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer.

We welcome your suggestions and comments.
If you are aware of a resource we should include,
please submit it through Feedback.

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